International Federation of 
                               Marfan Syndrome Organizations

 Member Organizations










Argentinia
Mario del Frade, Chairman
Marfan Argentina
Charcas 33913er piso office 32
Buenos Aires, Republic Argentina
www.marfan.org.ar
email: Marfan@argentina.com

Australia
Queensland, Australia
Susanne Hemphill
Marfan Association, Queensland Branch
P.O. Box 294
Sumner Park, Queensland 4074
Australia
Telephone: ++61 7 3376 6160
Fax: ++61 7 3279 1927
e-mail: marfanaustralia@hotmail.com

Victoria, Australia
Marfan Association Victoria Inc.
Sally Ferguson, President
PO Box 42
Sunbury, Victoria. 3429
Australia
Telephone: ++61 3 5784 1357
Fax: ++61 3 5784 1357
www.marfanvic.org.au
e-mail: yvette1@bigpond.com

New South Wales, Australia
Marfan Support Group
Trudy Whaite
mail@marfan.net.au
www.marfan.net.au


Belgium
Yvonne Flemal - Jousten
Association Belge du Syndrome de Marfan
27A, rue Residence Air Pur
B 4623 - Magnee
Belgium
Telephone: ++32 4 355 13 59
e-mail: yvonne.jousten@easynet.be
www.marfan.be

Brazil
Brazilian Marfan Association (Marfan Brasil)
Flavia Gioia, President
E-mail: flavia.gioia@br.abnamro.com
www.marfan.com.br

Contact:
Adriano Rodrigues
Rua dos Juritis - Quadra 07 - Apt.403 - Ed. Mirela
Jardim Renascença
Sao Luis, MA, Brazil
CEP 65075-240
Tel: 55 98 3236 0455
Cell phone: 8129 9224
E-mail:adrianocostarodrigues@yahoo.com


Canada
"Making A Difference"
"Le Pouvoir de changer les choses"

Eva Theofilopoulos, Executive Manager
Josipa Paska, Director
Central Plaza Postal Outlet
128 Queen St. S., P.O. Box 42257
Mississauga Ontario L5M 4Z0
Canada
Telephone: (905) 826-3223; FAX: (905) 826-2125
e-mail: josipa.paska@aak.com
info@marfan.ca
Website: www.marfan.ca

China
Lydia Chen
e-mail: lcsnoopy@21cn.com

Costa Rica
Michelle Gómez
Tel: (506) 817- 0001
E mail: mich_go19@hotmail.com

Cuba
Carolina Douglas
Cuban Association of Marfan Syndrome
Calle 34 No. 310, apto2
entre 3ra y 5ta, Miramar
Ciudad de La Habana 11300
Cuba
Fax: ++337 330145

Denmark
Ms. Bodil Davidsen
Danish Marfan Association
Frederikshave 34 st. th.
DK-3400 Hillerod
Denmark
Tel. ++45 4826 3652
Fax ++45 4826 3752
e-mail: msdk@get2net.dk
www.marfan.dk

Finland
Leila Raninen
Finnish Marfan Association
PO Box 1328 SF-00101
Helsinki, Finland
Telephone: ++35894171727
e-mail: iinfo@marfan.fi
www.marfan.fi

France
Annette Belloncle
Association Syndrome de Marfan Amis d'Antoine (A.S.M.A.A.)
B.P. 63
F-95160 - Montmorency
France
Telephone/Fax: ++33 139 64 56 12
e-mail:
jtihierr@free.fr

Paulette Morin
Association Française du Syndrome de Marfan (A.F.S.M.)
13, Allee des Terasses
F-77200 Torcy
France
Tel. ++33 164620375
Fax ++33 160 057 910
e-mail: vivremarfan@caramail.com
www.vivremarfan.org

Germany
Marfan Hilfe (Deutschland) e.V.
Post Box 0145
D-23691 Eutin
Germany
Tel: ++49 4521 8305035
Fax: ++49 4521 8305034
e-mail: kontakt@marfan.de
www.marfan.de

Greece
Xanthi Zafiris
Greek Association of the Marfan Syndrome
tel/fax 0030 210-2793075
Athens
email: marfansyndromegr@yahoo.com

Guatemala
Evelyn Oliva Barrios
Guatemala, City
email: marfanguatemala@hotmail.com

India
Chirarnjib Nath
South Hazarapar,
Tezpur, Assam
India 784001
e-mail: sc.nath@gmail.com and ck.nath15@yahoo.com

Ireland
Mary O'Driscoll
Marfan Syndrome Support Group Ireland, Ltd
78 Whitehorn Drive
Palmerstown, Dublin 20
Ireland
e-mail: Marfan@eircom.net
http://www.marfan.ie

Italy
Silvia Salice
Associazione Vittorio
Strada alla Villa d'Aglié 23/3
I-10132 Torino
Italy
Telephone/Fax: ++39 11898 0995
e-mail: michaela.tarantini@marfan.info
www.marfan.info

Japan
Marfan Network Japan (MNJ)
President, Yoko Shimozaki
Fukuike 1-17-1, Tenpaku-ku
Nagoya-city, Aichi-ken,
Japan 468-0049
e-mail:yoko-shimo@gf6.so-net.ne.jp

info@marfan.gr.jp (MNJ)
Web site: www.marfan.gr.jp (Japanese only)

Japan Marfan Association (JAMAA)
Keiko Inoi, Representative Director
c/o Aichi Japan Intractable Diseases Information Center
N105 COMBi Honjin, 1-24 Matsubara-cho, Nakamura-ku, Nagoya, Aichi 453-0021

Telephone: ++050-5532-6503
FAX: ++053-454-6764
e-mail: info@marfan.jp
web site: http://www.marfan.jp

http://www.marfan.jp/modules/jamaa/index.php?content_id=5
7

Mexico
Marcos and Geraldine Duran
Sindrome de Marfan de Mexico A.C.
Paseo de Lilas #92
Loc. 58, Suite 143
Bosques de Las Lomas
Mexico D.F. C.P. 05120
Mexico
Tel/Fax: ++52-452260
e-mail: admin@marfan.org.mx
www.marfan.org.mx

Netherlands
Contactgroep Marfan Nederland
Postbus 1809
3800 BV Amersfoort
The Netherlands
Phone +31 (0)33 422 65 46
website: www.marfansyndroom.nl
e-mail: contact@marfansyndroom.nl

New Zealand
No current contacts

Norway
Wenche Snekkevik
Marfanforeningen co/FFO
PB 4568
0404 Oslo, Norway
Tel. 47 - 46 66 00 06

E-mail: info@marfan.no
wenche@marfan.no
http://www.marfan.no

Peru
Contáctenos a:
La Asociación Peruana del Síndrome de Marfan (APSIM)
Cecilia Delgado Tello
Calle Carlos Aguirre 189 301.
Urb Prolongación Benavides. Santiago de Surco.
Lima. Perú
Telefono : (511) 2743767
e-mail: marfanperu@marfanperu.org

Web site: http://www.marfanperu.org

Poland
Polish Marfan Association
Swietojanska 49/17
PI-81-391 Gdynia
Poland
Telephone: ++48 601286245
Fax: ++48 58 629 4425
e-mail: marfan@marfan.pl
or: marfan@gdansk.sprint.pl
www.marfan.pl

Portugal
e_mail: marfan.pt@gmail.com
Telf: + 351 225 431 080 / +351 210 970 766
Fax: +351 225 431 089


Singapore
Willie Loh Chung Wei
Blk 471 Ang Mo Kio Ave 10 #11-774 SE 560471
Republic of Singapore
Telephone: + 65 9145 5708
e-mail: Lchungwe@yahoo.com

Singapore Marfan Support
www.marfansingapore.org
e-mail:
support@marfansingapore.org

Slovakia
Post address: AMS, Lukovicova Betty
Vajnorska 54, 831 04 Bratislava, Slovakia
Tel: 00421 2 44257904, mobile phone : 00421 903 74 74 24
E-mail: marfan.sk@mail.t-com.sk
E-mail: lukovicova@stonline.sk
Website: http://marfan.szm.sk/

South Africa
South African Marfan Syndrome Organisation
(Suid-Afrikaanse Marfansindroom Ondersteuningsgroep)
P O Box 12895
Queenswood 0121
Telephone: +27 12 333 3894

e-mail: info@marfan.org.za
http://www.marfan.org.za

Online Marfan Syndrome diagnosis tool:
http://www.marfan.org.za/diagnosis.html

Spain
SIMA Asociación de Afectados Síndrome de Marfan
Oficinas Centrales
C/ Pardo Jimeno nº 55, entlo. C
E - 03007 Alicante
Teléfono: + 34 965 11 11 02 - +34 619 19 61 65

e-mail: Info@marfan.es
www.marfan.es
Sweden
Karin Olsson
Svenska Marfanföreningen
c/o Ulla Frick
St. Eriksgatan 50 A
112 34 Stockholm
Sweden
Tel: +46 8 651 3609
e-mail: bertil.frick@swipnet.se
karin.olsson@vansterpartiet.se
www.marfanforeningen.se

Switzerland
Marfan Stiftung Schweiz
Marktgasse 31
CH-3011 Bern
Switzerland
Telephone: 41 31 312 11 22
Fax: 41 31 312 11 20
e-mail: info@marfan.ch
www.marfan.ch

Syria

Mohammad Mouchli
Tel:00963-11-6664647
Tel:00963-11-6662864
P.O.Box:16428 Damascus -Syria
Email:Marfan@Shuf.Com

Ukraine
Contact Person: Sergii Demchenko
Ukrainian Marfan Care Centre (UMCC)
P.B. #213
Odessa-23 65023 UKRAINE

Tel. + 380-(66)-7-700-710
E-mail Address: info@marfan.in.ua
Web site Address: http://www.marfan.in.ua

United Kingdom
Diane Rust
Marfan Association UK
Rochester House
5, Aldershot Road
Fleet, Hampshire GU51 3NG
United Kingdom
Telephone: ++44 1252 810472
Fax: ++44 1252 810473
e-mail: contactus@marfan-association.org.uk
www.marfan-association.org.uk

United States
Carolyn Levering
National Marfan Foundation
22 Manhasset Avenue
Port Washington, New York 11050
USA
Telephone: ++ 516-883-8712
++800-862-7326
Fax: ++516-883-8040
e-mail: staff@marfan.org
www.marfan.org

World Organizations:

Beatruce Preston
Chairman
European Marfan Support Network (EMSN)
Römerweg 4
CH-4410 Liestal
Switzerland
+41 61 921 91 89
e-mail:
preston5@bluewin.ch

Priscilla Ciccariello
President
International Federation of Marfan Syndrome Organizations (IFMSO)
c/o National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
e-mail: Cilla71@aol.com
www.marfanworld.org


Revised 02/2005


H O M E        S E A R C H        C O N T E N T S        F E E D B A C K


IFMSO
C/O National Marfan Foundation
22 Manhassett Avenue, Port Washington, NY 11050

Contact Information
President - Priscilla Ciccariello, United States: cilla71@aol.com
Treasurer - Cheryl Williams, United States: research@marfan.org
Webmaster - Peter Ciccariello: ciccariello@gmail.com

IFMSO membership information and forms are available as downloadable PDF files located at the top of the "Home" page.
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Copyright 2005 International Federation of Marfan Syndrome Organizations