The International Federation of Marfan Syndrome Organizations (IFMSO) was formally founded in 1992 at the Second International Symposium on the Marfan Syndrome in San Francisco, California.

The purposes of IFMSO are to:
• Share current, accurate information about the Marfan syndrome worldwide and facilitate international communication among medical professionals and the general public.
• Establish standards for diagnosis and treatment of the Marfan syndrome.
• Support and foster research throughout the world and facilitate communication with research centers and researchers worldwide.

For information on membership check out the IFMSO Statement of Purpose highlighted at the top of the home page. Thie IFMSO Statement of Purpose will provide membership information and information about the annual dues payment for IFMSO membership. Yes, you may pay by credit card. The National Marfan Foundation will accept your dues on behalf of the IFMSO with your credit card number. To do this, please contact Dr. Jo Grima, Director of Research, National Marfan Foundation. Her e-mail is: jgrima@marfan.org. (Tel: 1-516-800-8-Marfan, Ext. 17).

Suggestions on how to use this website.

The IFMSO website provides information relating to the International Federation of Marfan Syndrome Organizations (IFMSO) and the Marfan syndrome which you may access by clicking on to the sites indicated on the left hand side of this "Home" page under each countries' name. You may also "link" on to the IFMSO member websites by visiting our Members page (box on the left hand side of the IMFSO home page). Linking to the websites of the different IFMSO member countries will provide information on the Marfan syndrome in the language of that country. You can also access the various "linked" websites by visiting our Members page.

Please visit our Members page, where you will find links to over twenty-five member country's websites and associated e-mail contacts. This comprehensive worldwide directory provides easy access to current information and recent international news about the Marfan syndrome and The International Federation of Marfan Syndrome Organizations (IFMSO), all presented in your own language. Just find your country and click on the link.

Additionally, you can access our Search Page and our Feedback Page. Please send us your comments and suggestions.

It is our hope that this website will facilitate communication between all people that are affected by the Marfan syndrome, international researchers, and medical professionals throughout the world. MarfanWorld is the official website of the International Federation of Marfan Syndrome Organizations (IFMSO), please enjoy your stay [and feel free to send us your comments and suggestions for improving this website.

For information on the diagnosis and management of Marfan syndrome, including suggestions for knowledgeable doctors,
contact the individual member organizations found under "Members" on this site.

Postal Address:

IFMSO
C/O National Marfan Foundation
22 Manhassett Avenue, Port Washington, NY 11050
http://www.marfanworld.org

Contact Information
President - Priscilla Ciccariello, United States: cilla71@aol.com
Treasurer - Cheryl Williams, United States: research@marfan.org
Webmaster - Peter Ciccariello: ciccariello@gmail.com

IFMSO membership information and forms are available as downloadable PDF files located at the top of the "Home" page.
Copyright © 2005 International Federation of Marfan Syndrome Organizations