The International Federation
of Marfan Syndrome Organizations (IFMSO) was formally
founded in 1992 at the Second
International Symposium on the Marfan Syndrome in San
The purposes of IFMSO are
Share current, accurate information about the Marfan
syndrome worldwide and facilitate
international communication among medical professionals and
the general public.
Establish standards for diagnosis and treatment of
the Marfan syndrome.
Support and foster research throughout the world and
facilitate communication with research centers and researchers
For information on membership
check out the IFMSO Statement of Purpose highlighted at the
top of the home page. Thie IFMSO Statement of Purpose will
provide membership information and information about the annual
dues payment for IFMSO membership. Yes, you may pay by credit
card. The National Marfan Foundation will accept your dues
on behalf of the IFMSO with your credit card number. To do
this, please contact Dr. Jo Grima, Director of Research, National
Marfan Foundation. Her e-mail is: firstname.lastname@example.org. (Tel:
1-516-800-8-Marfan, Ext. 17).
on how to use this website.
The IFMSO website provides
information relating to the International Federation of Marfan
Syndrome Organizations (IFMSO) and the Marfan syndrome which
you may access by clicking on to the sites indicated on the
left hand side of this "Home" page under each countries'
name. You may also "link" on to the IFMSO member
websites by visiting our Members page (box on the left hand
side of the IMFSO home page). Linking to the websites of the
different IFMSO member countries will provide information
on the Marfan syndrome in the language of that country. You
can also access the various "linked" websites by
visiting our Members page.
Please visit our Members
page, where you will find links to over twenty-five member
country's websites and associated e-mail contacts. This comprehensive
worldwide directory provides easy access to current information
and recent international news about the Marfan syndrome and
The International Federation of Marfan Syndrome Organizations
(IFMSO), all presented in your own language. Just find your
country and click on the link.
Additionally, you can access
our Search Page and our Feedback Page. Please send us your
comments and suggestions.
It is our
hope that this website will facilitate communication between
all people that are affected by the Marfan syndrome, international
researchers, and medical professionals throughout the world.
MarfanWorld is the official website of the International Federation
of Marfan Syndrome Organizations (IFMSO), please enjoy your
stay [and feel free to send us your comments and suggestions
for improving this website.
information on the diagnosis and management of Marfan syndrome,
including suggestions for knowledgeable doctors,
the individual member organizations found under "Members"
on this site.
C/O National Marfan Foundation
22 Manhassett Avenue, Port Washington, NY 11050
President - Priscilla Ciccariello, United States: email@example.com
Treasurer - Cheryl Williams, United States: firstname.lastname@example.org
Webmaster - Peter Ciccariello: email@example.com
membership information and forms are available as downloadable
PDF files located at the top of the "Home"
Copyright © 2005 International Federation of Marfan Syndrome