WELCOME TO MARFAN WORLD
Marfan World, which was formally known as the International Federation of Marfan Syndrome Organizations was founded in 1992 at the Second International Symposium on Marfan Syndrome in San Francisco, California.
The mission of Marfan World is to:
Share current, accurate information about the Marfan syndrome and related disorders worldwide
Facilitate international communication among medical professionals who serve the Marfan and related disorders community
Facilitate communication between international organizations representing patients and families affected with Marfan and related disorders.
Support and foster global research initiatives
Convene the International Symposia on Marfan Syndrome and Related Disorders