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WELCOME TO MARFAN WORLD

Marfan World, which was formally known as the International Federation of Marfan Syndrome Organizations was founded in 1992 at the Second International Symposium on Marfan Syndrome in San Francisco, California.

The mission of Marfan World is to:

  • Share current, accurate information about the Marfan syndrome and related  disorders worldwide

  • Facilitate international communication among medical professionals who serve the Marfan and related disorders community

  • Facilitate communication  between international organizations representing patients and families affected with Marfan and related disorders.   

  • Support and foster global research initiatives

  • Convene the International Symposia on Marfan Syndrome and Related Disorders

 


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member organizations

Marfan World member organizations span the globe.

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SYMPOSIA

Our members have gathered for nine international symposia to date.

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HISTORY

Learn about the founding of Marfan World.

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