MARFAN WORLD MEMBER ORGANIZATIONS

Argentina

Dr. Monica M. Segura, President
Email: Marfanargentina@gmail.com

Australia

Marfan Association, Queensland
PO Box 2613
Chermside Centre
Qld 4032, Australia
Email: marfanqld@gmail.com
Email: maq@ald.chariot.net.au
Facebook: www.facebook.com/MarfanAssocQLD
www.marfan.net.au/queensland

Victoria, Australia
Marfan Association Victoria Inc.
Contact: Rosslyn Jablonsky, President
Contact: Kate Anderson-Nix, Secretary
PO Box 477
Belmont, Victoria. 3216, Australia
Telephone: ++1 300 691 164 (within Australia)
Email: info@marfanvic.org.au
www.marfanvic.org.au

New South Wales, Australia
Marfan Support & Information in NSW, Australia
Contact: Sharon McLoughlin or Glen Meyers
Email: info@marfan-initiative.at
www.marfan.net.au

Austria

Marfan Initiative Österreich
Contact: Heidemarie Egger
Bahnstraße 36
2540 Bad Vöslau, Austria
Email: info@marfan-initiative.at
www.marfan-initiative.at

Belgium

Association Belge du Syndrome de Marfan
Contact: Yvonne Flemal - Jousten
Rue Residence Air Pur 27A
4623 Magnee, Belgium
Telephone: ++32 4 355 13 59
Email: yvonne.jousten@skynet.be
www.marfan.be

Brazil

Brazilian Marfan Association (Marfan Brasil)
Rua Napoleão de Barros, 715 - 10º andar, Vila Clementino
São Paulo - SP - CEP: 04024-002
Telephone: (55 - 11) 3887.9168
www.marfan.com.br

Canada

Genetic Aortic Disorders Association

Chrisanne Campos, Ph.D., Executive Director
Email: chrisanne@marfan.ca
Central Plaza Postal Outlet
128 Queen Street S.
P.O. Box 42257
Mississauga Ontario L5M 4Z0, Canada
Toll free Telephone: 1-866-722-1722
Telephone: 905-826-3223
Fax: 905-826-2125
Email: info@marfan.ca
www.gadacanada.ca

 

China

Hong Kong Marfan Syndrome Association
Chairman: Mr. Liu Zhiqiang
Contact: Olga Chew or Steve Lau
Email: olgachew@yahoo.com
Email: steve_ckl@yahoo.com
Email: inquiry@marfan.org.hk
www.marfan.org.hk

Kangxin Marfan Syndrome Care Center
Mr. Jiguo Chang
Tel:+86-010-6445 6326
Email: kangxin@marfan.org.cn
Website: www.marfan.org.cn

Costa Rica

Contact: Michelle Gómez
Email: michgoo@gmail.com

Cuba

Cuban Association of Marfan Syndrome
Contact: Carolina Douglas
Calle 34 No. 310, apto2
entre 3ra y 5ta, Miramar
Ciudad de La Habana 11300, Cuba
Fax: ++337 330145
Email: bernaza@mes.gob.cu

Denmark

Danish Marfan Association
Contact: Sven Back
Randlevvej 16
8300 Odder, Denmark
Telephone: ++45 4826 3652
Fax: ++45 4826 3752
Email: sven@marfan.dk
www.marfan.dk

Finland

Finnish Marfan Association
Contact: Leila Raninen
PO Box 1323 FIN-00101
Helsinki, Finland
Telephone: 040-703 5755
Email: leila_raninen@hotmail.com
Email: info@marfan.fi
www.marfan.fi

France

Association Française du Syndrome de Marfan (A.F.S.M.)
Contact: Phillipe Brunet
4, Grand'Place  
92350 Le Plessis-Robinson, France
Telephone: ++33 164620375
Fax: ++33 160 057 910
Email: philippe.brunet26@gmail.com
www.vivremarfan.org

Germany

Marfan Hilfe (Deutschland) e.V.
Contact: Marina Vogler
Post Box 0145
D-23691 Eutin, Germany
Telephone: ++ 0700 - 22 33 4000
Fax: ++49 4521 8305034
Email: kontak@marfan.de
Email: m-vogler@marfan.de
www.marfan.de

Greece

Greek Association of the Marfan Syndrome
Contact: Xanthi Zafiris
Telephone/Fax: 01130 210 6854051
Athens
Email: marfansyndromegr@yahoo.com

Guatemala

Contact: Evelyn Oliva Barrios
Guatemala City, Guatemala
Email: marfanguatemala@hotmail.com
Facebook: https://www.facebook.com/pages/Sindrome-Marfan-Guatemala/353133678065572

India

Chirarnjib Nath
South Hazarapar
Tezpur, Assam
India 784001
Email: sc.nath@gmail.com
Email: ck.nath15@yahoo.com
www.rarediseasesindia.org/marfan-1

Ireland

Marfan Syndrome Support Group
Contact: Mary O'Driscoll
Carmichael House
North Bruswick Street
Dublin 7, Ireland
Telephone: 01 6239563
Email: info@marfan.ie
www.marfan.ie

 

Italy

Associazione Vittorio
Contact: Silvia Salice
Telephone/Fax: ++39 11898 0995
Email: info.marfan@smatteo.pv.it
www.marfan.info

J Peter Associazione Onlus – Milan
Contact: Maria Carla Favini
Email: info@jpeteronlus.org
Email: mariacarla.favini@libero.it
www.jpeteronlus.org
Facebook:  Associazione J Peter

Associazione Marfan - Bologna
Email: info@assomarfan.it
www.assomarfan.it

ITALY CLINICS:

Milano Marfan Clinicc/o Ospedale "Luigi Sacco"
Director: Dr. Alessandro Pini
Telephone: 02 39042279 - 02 39043252
Email: pini.alessandro@hsacco.it 

Pavia Centro per le Malattie Genetiche Cardiovascolari
Director: Dr. Eloisa Arbustini
Contact: Micaela: 0382 501486
Email: info.cardiomiopatie@smatteo.pv.it

Bologna Centro Marfan c/o Policlinico "S.Orsola - Malpighi"
Director: Prof. Marco Bonvicini
Coordinator: Dr. Luigi Lovato , Dr.ssa Mariucci
Telephone e Fax: 051 6363005
Email: centromarfan@aosp.bo.it

Firenze Ospedale Careggi 
Director: Dr. Guglielmina Pepe
Telephone: 055 7947514

Roma Centro Marfanc/o Policlinico di Tor Vergata
Director: Prof. Giovanni Ruvolo
Telephone: 06 274599 - 3383833791

Japan

Marfan Network Japan (MNJ)
Contact: Yoko Shimozaki, President
Fukuike 1-17-1, Tenpaku-ku
Nagoya-city, Aichi-ken,
Japan 468-0049
Email: yoko-shimo@gf6.so-net.ne.jp
Email: info@marfan.gr.jp
www.marfan.gr.jp

Japan Marfan Association (JAMAA)
Contact: Keiko Inoi, CEO
c/o Aichi Japan Intractable Diseases Information Center
N105 COMBi Honjin, 1-24 Matsubara-cho, Nakamura-ku, Nagoya, Aichi 453-0021
Telephone: ++050-5532-6503
FAX: ++053-454-6764
Email: info@marfan.jp
www.marfan.jp

Mexico

Sindrome de Marfan de Mexico A.C.
Contact: Marcos and Geraldine Duran
Paseo de Lilas #92
Loc. 58, Suite 143
Bosques de Las Lomas
Mexico D.F. C.P. 05120, Mexico
Tel/Fax: ++(01-55) 22-24-40-05/ (01-55) 55-96-06-60
Email: amin@marfan.org.mx
www.marfan.org.mx

Netherlands

Contactgroep Marfan Nederland
Postbus 1809
3800 BV Amersfoort, The Netherlands
Visiting address:
Stationsstraat 79G
3811 MH Amersfoort
Telephone +31 (0)33 422 65 46
Email: contact@marfansyndroom.nl
www.marfansyndroom.nl

Norway

Marfan Association
c/o Norges Blindeforbund Hordaland
Rasmus Meyers Allè 5
5015 BERGEN, Norway
Tel. 47 - 46 66 00 06
Email: info@marfan.no
Facebook: www.facebook.com/marfanforeningen

Peru

La Asociación Peruana del Síndrome de Marfan (APSIM)
Contact: Manuel Vizcarra Barton
Calle Arica 180-Miraflores
Lima. Perú
Telefono : (511) 4471717 Annex (1000)
Email: marfanperu@marfanperu.org
www.marfanperu.org

Poland

Polish Marfan Association
Contact: Jan Kawalec, President
Swietojanska 49/17
PI-81-391 Gdynia, Poland
Telephone: ++48 601-28-62-45
Telephone: (+48-58) 620-97-23
Fax: (+48 58) 62- 44-25
Email: marfan@marfan.pl
www.marfan.pl

Portugal

Marfan Portugal
Telf: + 351 225 431 080 / +351 210 970 766
Fax: +351 225 431 089
Email: marfan.pt@gmail.com
www.marfanportugal.wordpress.com/

Slovakia

Slovak Marfan Foundation
Contact: Lukovicova Betty
Vajnorska 54,
831 04 Bratislava, Slovakia
Telephone: 00421 2 44257904, mobile phone : 00421 903 74 74 24
Email: marfan.sk@mail.t-com.sk
Email: lukovicova@stonline.sk
www.marfan.szm.sk

South Africa

Contact: Richard Le Roux
Email: Richard.le.Roux@retecon.co.za

Spain

SIMA Asociación de Afectados Síndrome de Marfan
Oficinas Centrales
C/ Arzobispo Loaces, 12 Entreplanta
F-03003Alicante, Spain
Teléfono: + 34 965 11 11 02 - +34 619 19 61 65
Email: Info@marfan.es
www.marfan.es

Sweden

Svenska Marfanföreningen
Contact: Carina Olsson
Hedenhösvägen 8
141 43 Huddinge, Sweden
Telephone: +46 8 651 3609
Email: karinolsson@me.com
Email: Marfan.sverige@gmail.com
www.marfanforeningen.se

Switzerland

Marfan Stiftung Schweiz
Contact: Giancarlo Bombardieri  
Marktgasse 31
CH-3011 Bern, Switzerland
Telephone: 41 31 312 11 22
Fax: 41 31 312 11 20
Email: info@marfan.ch
www.marfan.ch

United Kingdom

Marfan Association UK
Contact: Diane Rust
Rochester House
5, Aldershot Road
Fleet, Hampshire GU51 3NG, United Kingdom
Telephone: ++44 1252 810472
Fax: ++44 1252 810473
Email: contactus@marfan-association.org.uk
www.marfan-association.org.uk

United States

The Marfan Foundation
Contact: Susan Leshen
22 Manhasset Avenue
Port Washington, New York 11050, USA
Telephone: ++ 516-883-8712
++800-862-7326
Fax: ++516-883-8040
Email: staff@marfan.org
www.marfan.org

World Organizations:

 Marfan Europe Network
Contact: Martin J. Skov, Chairman
Email: kontakt@marfan.de
www.marfan.eu

Marfan World
Previously International Federation of Marfan Syndrome Organizations (IFMSO)
Contact: Priscilla Ciccariello, President
c/o The Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050, USA
Email: Cilla71@aol.com
www.marfanworld.org